Reintubation Update #1: Do Not Be Anxious

Ayden did fine last night with reintubation. In fact, the chest x-ray following the event revealed that Ayden's lungs had reinflated. Ayden had a calm night, and even though he is on the ventillator and the previous sedations, he is not "riding the vent." Instead, he is initiating breaths or joining the ones the vent begins.

Dazed & Confused

Today Ayden will receive various respiratory therapies, such as IPV and hit, as well as Albuterol treatments. They are continuing to diurese him, but since he is wasting away to nothing (maybe this is slight exaggeration, but he is certainly skinnier), they have begun to give him food through his feeding tube. Over the next 24 hours, they will increase his feeds to what he was receiving before the Glenn procedure. He will be receiving the food as continuous feeds since that is safer while he is on the vent, but they assure me that it will be easy to move him back to boluses once he is extubated.

I needed something to hold, so I wouldn't pull on things I'm not supposed to touch.

So... it looks like his lungs need a couple more days before they extubate again. I am personally struggling. I am trying to be patient. I am trying to trust. I am trying to maintain perspective. I'm biting back tears... only sometimes successfully. I just want to see Ayden happy again. And I miss my little boy.

Peaceful Slumber

"Rejoice in the Lord always. I will say it again: Rejoice!

Let your gentleness be evident to all. The Lord is near.

Do not be anxious about anything, but in everything,

by prayer and petition, with thanksgiving,

present your requests to God.

And the peace of God, which transcends all understanding

will guard your hearts and your minds

in Christ Jesus."

Philippians 4: 4-7 NIV