More Like Giant Steps

Ayden would have preferred "Ayden Steps," but today turned out to be much bigger. They switched Ayden from the BiPAP machine to Vapotherm. That alone is a big step; however, he also had his RA line removed, as well as his pacing wires. He had a PICC line put in, in addition to an IV. Over the past few days, he has been oversedated, so they have been holding doses of medication, but now we think he may be going through withdrawal. Like I said, big day. They have asked a lot of a little guy with respiratory issues, but he is hanging in there. He continues to let everyone know that he ain't happy by desatting and turning, yes, the color of eggplant. We are making progress, but his CO2 levels continue to a bit on the high side. They are not necessarily getting worse, but nor are they getting any better. At some point, they need to improve.

Some fun details: I got to enjoy holding my little one. He fell asleep in my arms, nestling his head in my belly or chest. He likes for people to do mouth care on him; he eats the minty moisturizer. He also likes for people to sit him up in the bed. He likes it so much that he will fall asleep that way, and if you try to lay him back in the bed, he will start to scream.... well, scream as much as he can. He doesn't have a loud cry, but one can hear him; he does not appear to have vocal paralysis (phew!). Ayden may also be teething... or it could just be mouth sores from being intubated; I'm not sure which is preferable.

Daddy, I am just going to take a little nap.