"Weeeeee! More! More!"

Signing to his daddy that he wants "more"

I remember my mama telling me about how awesome it was to hear Ayden exclaim "weee" because he was having fun. Today the nurses and patients ON THE FLOOR (yes, he's been on the floor since yesterday afternoon!) got to hear Ayden's "wees" up and down the hallways, as his daddy ran him back and forth and all around. The wagon ride was sort of a reward for the hard work he was putting into walking laps around the floor (still under protest).

We are starting to see Ayden brighten up. He's talking more, smiling more, and occasionally laughing. Granted, it takes some work for us to see some happy moments, but some moments are better than none. One of his biggest frustrations is his nasal cannula, which is he constantly messing with. It still has .25 liters of oxygen running through it, which is very little, but Ayden hasn't yet shown he is ready for a wean.

I hate this thing!

Ayden's morning x-ray didn't seem much different to the team, but Bryan thought it appeared clearer. Ayden is still receiving CPPD for the lung collapse, and we are hoping that the walking regiments will assist his heart and lungs.

His heart seems to continue to fluctuate between junctional and atrial rhythms, so it is neither getting better nor worse. Cardiology doesn't seem to be in the least bit worried. Bryan and I aren't big fans of rhythm issues (based on Ayden's past history with them), but we want to trust the doctors.

Ayden got a bath in the bathtub today. I am told it was quite the ordeal. He got new leads and attachments and bandages, as well as clean clothing and bedding. I know he must feel better. He continues to drink well, and he communicates to his daddy when and what he wants to drink. He began eating some food today, so we are hoping his belly will tolerate that well. The doctors continue to wean diuretics and make changes to other medications. I think he'll go home on significantly fewer than he did after the Glenn. And... Ayden lost his foot IV, which means he has only the one left in his hand... which only flushes; it doesn't draw. This means that they have to stick him every time they want labs, which is usually every day. Poor baby!

The nights are rough for the boys. Neither is sleeping well. Ayden is sleeping in 45 minute increments, which means that Bryan is too. Of course, the hospital's constant interruptions don't help either of them get any rest. If I had a prayer request for them, it would be that they get a good, long, solid sleep.