Day Eight

Last Monday, Ayden went in for surgery. A week later, he's on the floor and working towards getting home. His pacing wires were pulled earlier today. An ECHO is always done four hours afterwards to check for effusions. Since he hadn't had one yet, Ayden's was a full, post-Fontan ECHO. Since I never heard anything to the contrary, I assume everything checked out.

"not happy"

He's been up and walking twice today. On the second one, he only complained towards the very end. It sure is a lot easier to help him with his jaunts when he's not tethered to an oxygen tank.

Nasal cannula is only there if needed.

Yes, he's currently off oxygen. Has been for several hours now. As I type this, he's (supposed to be) falling asleep for the night. The evening will be the real test as to whether he can stay off of the oxygen. We'll see what happens. At rounds this morning, the statement was made that oxygen is the only thing keeping him here.

Getting compliments on my hat makes me
stop whining only temporarily.

We've gone through this too many times to allow comments like that to get our hopes up, but it's a nice thought. We'll remain skeptical until it actually happens. Besides, going home is not the same as staying home. (A reminder of this we did not want or need: as of this afternoon, Jude is Ayden's next door neighbor on the floor).

Again, we'll see what happens. They've been fairly aggressive on the diuretic wean, which could easily come back to bite us. Or he could go back on oxygen overnight. Or his (still sometimes) junctional rhthym could do something funky (if you pray for anything, make it that, as his pacing wires are no more).

And thanks for all the prayers. We both slept much better last night.