Heart Families

When you have children that are about to undergo serious surgery in June, you become aware of all the things that you want them to do before the big day arrives. Diana and I have tried to get Jude and Ayden together more often this past month. The boys are playing well together. Sometimes they seem just content to be playing in the same room. Occasionally, they take toys from each other, but they do a decent job of giving them back or at least taking instructions from a parent on how to share. Getting pictures of the two is nearly impossible, but...

The boys love to play trains.

Diana told me about a great opportunity for our families to meet up at LifeWay to interact with Matt Hammitt of Sanctus Real. Matt published a children's book called I Couldn't Love You More based on the lyrics from a song of the same title. The song was written as a lullaby to his son, Bowen, who also has hypoplastic left heart syndrome. Bowen, like Jude and Ayden, is awaiting his third surgery, the Fontan.

In Ayden's copy of the book, Matt writes, "To Ayden, God loves you, and your special heart, so much more that you can imagine. Matt Hammitt Psalm 139"

The heart world is somewhat small, and we have met a lot of amazing people during our family's journey. Please pray for our families as we struggle and rejoice in this next surgery. Please continue to pray for our new friends, the Melchiorres, as their son, Paul, recovers from the second surgery, the Glenn.