The last couple days have, not surprisingly, been a roller coaster ride. Tuesday went smooth. Wednesday afternoon was rough. Late Wednesday was great. Early Thursday was bad. Then okay. Then less okay. Then back to okay. Etc., etc., etc.
Adyen recovered nicely from his "minor setback" yesterday. He was doing so well that they decided to wean him off of the paralytic and the sedative. Eventually, he started to wake up. The first time he did was earlier this morning. Unfortunately, once he woke up he realized he had a breathing tube down his throat. And he didn't like it. So, in his little baby mind, the best thing to do is to fight it. His fighting it consists of him holding his breath and basically locking down the core of his body, causing everything to go haywire. He did the same thing again when he started to wake up a few hours ago. And, as I'm sitting here, he's getting cranky (even though he's doped up) because the nurse is changing his diaper.
The course of action, then, is probably going to be to keep him on a sedative either until the surgery or until he decides to stop being so cranky about it. As I've already mentioned, it really stinks to not get to interact with him, but it's really not fun to sit here and watch his numbers go all haywire because we're trying to allow him to wake up. It's just not worth it.
As before, the doctors and nurses are doing an awesome job of taking care of him. They are on top of things when anything undesirable starts to pop up.
So, the ride continues. I'm enough of a realist to know that it will continue for a while. Up and down and round and round.
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The rumblings around here are that his surgery might be on Monday, but no one has told me definitively that he is on the schedule for then (and even if he is, it doesn't mean for sure that it'll happen).
Been thinking about you three a lot today...praying for all of you...asking God to give you strength, encouragement, perspective and grace! Love to you all... (Jessica Power)
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