November 9, 2010

I Don't Know What to Title This

After Ayden's Norwood surgery, Ayden and most of the 6C patients were diagnosed with a milk protein allergy. (It was a strange epidemic since the population of those with an actual milk protein allergy is .0-something %.) Ayden was put on an "elemental" formula called Elecare, known to you all as "Cheez-Its." Because Ayden's lymph system has tiny holes (from surgery), the more complex strands of proteins in Elecare are creating the chylus that is leaking into Ayden's chest cavity. As a result, Ayden is now on Enfaport, which apparently has less complex strands but also has milk protein. Since Ayden has not had to digest milk protein in many months, his tummy has been on overload....

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I started this post earlier today, and I just got some news that a baby that I have thought about a lot over the past month has gone to be with the Lord.... I cannot begin to write all that I am feeling, so I will just request that you say a prayer for a family you don't know now but will come to know one day.

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