I apologize that we have been so slack in updating the blog. Our inability to type the days' events is a good sign. It means that we are busy being a family at home. (Thank you, Lord!) I just finished unpacking and putting away the things from our hospital stays. I am hoping this means that we get to continue life away from the emergency room and 6C.
The past few weeks have been about trying to establish a routine that is healthy for all of us. We seem to be failing miserably, but we are trying. Ayden has difficulty sleeping past midnight, and he isn't napping terribly great either, so we are all sleep deprived. Ayden has been experiencing teething, reflux, and gassiness. We think we have found a plan that works for the teething and gassiness. Reflux? Well, reflux is out of our control, as it is most likely caused by his newest formula that he has to have until late January.
His gag reflex is super sensitive, which is unfortunate for a baby that wants to ease his gum pains with a finger or his pacifier but doesn't have the motor control to keep from gagging himself. In addition, the kid wants to be mobile so badly, but he hasn't yet developed the skills or the strength to do more than roll to his sides. He's managed a pretty amazing backbend that indicates to us his frustrations.
All of that is to say that Ayden can be unusually fussy, and we are trying to remain patient and joyful. We are so grateful to have him home, and we know that this phase will be short-lived. We all have so much to do and learn, and the adjustment will take time.
Please continue to pray for our little man. Pray that the diuretics keep the excess fluid away from his lungs. Pray that his oxygen saturations remain appropriate. Pray that the pains in his throat, belly, and teeth are eased. Pray that he will eat. Pray that he will sleep. Pray that he will learn to roll, sit up, and crawl quickly. Pray that he will maintain that Ayden spunk in spite of all that has happened and will happen. And please pray for us. Pray that we can be patient and kind and understanding and that we will always be mindful of the miracle life we have been given.
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