The Definition of "Normal"

Ayden’s first few days after surgery can be characterized by the medical world as “abnormal.” That is, he made rapid improvements over a short time period and had no complications.

The past two days, however, are what the doctors and nurses would anticipate. These are “normal” days for a child who has had the Norwood procedure. They feel anything but “normal” to Bryan and me. In fact, seeing Ayden struggle is very stressful, and we want nothing more than to get out of the valley and be back at the peaks. I personally am trying to be at peace about it and continue to “wait upon the Lord.” God has already been so good to us, and it is very apparent to me that God’s Healing Hand has been upon our baby boy.

Ayden seemed to start his day rather peacefully. In the late morning, his blood pressure dropped, and they have been chasing it with meds all day. In addition, his temperature fell, which they believe may indicate some kind of infection. They took a culture and started him on antibiotics, just in case. Since then, his temperature has risen back to normal. (There’s that word again; only this time, it does, in fact, mean “normal.”)

The good news from today is that his EKG looked perfect, as did his ultrasound. We are glad that his heart appears to be doing so well. Blessed Assurance.

Bryan and I have stood by Ayden’s bed quite a bit over the past two days. We stroke his forehead, hold his hand, talk to him, and read to him. I think we all feel comfort in being together. I am so thankful for our little boy. I loved him even before he was conceived, and I know that my God loves him far more unconditionally.