I feel a little bit like I am going to throw up. That is a completely irrational response to our current situation, but I think I'm entitled to a few unreasonable reactions.
Ayden seems to be experiencing cyclical issues with his lungs. He has little (.05 liters) or no oxygen and sats beautifully for many hours, and then he will have a few hours where he requires more oxygen (no more than .5 liters, which is still not much, but it's more than what he was on) to stay within his sat range.
Dr. Kavanaugh feels that we could be missing something. She has ordered an ECHO to check on Ayden's heart function. If nothing can be found, she is considering a catheterization to check on things more closely. We don't want any collateral veins, etc. causing issues with Ayden's heart, lungs, or blood flow.
In addition, there is concern that the IV (yes, the five attempt IV) is no longer drawing blood. Dr. K wants a PICC put in, which may or may not mean a return to the cath lab and then an overnight in the PCCU.
In summary, all regarding Ayden's physical health is up in the air. Did I mention that I feel as though I am going to throw up?
I would love to be the person that has great words of wisdom for you. But I'm not. I'm just a friend of your Aunt Kim who is continuously checking, hoping, and praying for Ayden. I've read you're entire blog for this past year, and it breaks my heart that two such terrific people have to go through this kind of experience... literally living from minute to minute with your beautiful baby boy. God is surely with you three
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