Ayden "failed" his 4th pacing study today. It took a little bit longer for the electrophysiologist to induce an SVT, but it was still relatively easy to do. The upshot is that they continue to believe they are making progress. They are going to give him all three medications and try again on Thursday morning. We joked this morning that, at this rate, Ayden will soon be able to administer his own pacing study - we'll just put him in the room and he'll let us know when he's done.
I believe I am finally getting a handle on this whole thing. Ayden has a an extra electrical pathway in his heart. I believe this extra pathway conducts the electrical signal more quickly than his normal pathway, which produces an extra, early beat. That beat starts the SVT. They think the medication he is currently on has stopped that issue. However, the extra pathway is apparently able to conduct a signal in both directions (up and down) through his heart, thus allowing a signal to travel back in the wrong direction, cause an early beat, and start the SVT. It is this problem that they are still working on. Hopefully, the three medications will take care of it.
As before, Ayden just powers right through the whole process. He required very little sedation (less than they had planned to give him and less than he got on Sunday). After he was back in his room, he again took a good amount of formula from his bottle. The kid's a machine.
Stay strong Mills family. You are all doing awesome. You can do it, I know its hard. Its been almost two years now and I still think back to our 12 weeks and have flooded by emotion. BUT you are wonderful parents and Ayden is so lucky to have you and you are blessed to have each other. Love you lots.
ReplyDelete